The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council
More about JEC         

 

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Site Map

Alphabetical Sitemap
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  • JEC - Who we are
    The Joint Epilepsy Council of the U.K. and Ireland (JEC) is an umbrella organisation which exists to represent the united voice of the voluntary sector and presents evidence based views on the need to improve services for people with epilepsy, their families, and carers in the UK and Ireland.
  • JEC Personnel
  • JEC Working Groups
  • JEC Education Group
    The JEC Education Group provides a forum for JEC members involved in the development of epilepsy education policy to provide considered input on education issues to the JEC Executive Committee.
  • JEC Health Group
    The JEC Health Provider Group aims to assist the JEC in raising the profile of epilepsy and campaigning for improvements in respect of all epilepsy-related issues by providing considered input on health issues to the JEC Executive Committee.
  • JEC Marketing and Communications Group
    The Marketing and Communications Group has been newly formed to support JEC lobbying activity and campaigns throughout the five countries of the JEC in order to gain maximum awareness and publicity and continue to increase the profile of the JEC and its member organisations. Additionally, the staging of the annual JEC BEST (Best Epilepsy Standards Today) and its communication will be directed by the group.
  • JEC Research Group
    The JEC Research Group provides a forum for JEC members involved in the epilepsy research to meet and discuss matters of mutual concern and interest.
  • JEC Residential Provider Group
    The JEC Residential Provider Group provides a forum for JEC members involved in the provision of residential services for people affected by epilepsy to meet and discuss matters of mutual concern and interest.
  • JEC Membership Policy
    Application for membership of Joint Epilepsy Council of the U.K. and Ireland (JEC) is open to any organisation or individual in the U.K. or Ireland that works to meet the needs of people with epilepsy and their families, subject to the approval of the Directors.
  • JEC Equal Opportunities Policy
    Statement of Intent
  • JEC Campaigns
    The relationship between government ministers, individual member organisations and the JEC.
  • JEC & Pharmaceutical Companies
    The JEC seeks to develop good working relationships with pharmaceutical companies interested in the field of epilepsy.
  • JEC - Emeside and Zarontin
    JEC is very concerned about the sudden discontinuation of Emeside capsules.
  • JEC Manifesto
    Epilepsy - the problem; Response from Governments; JEC response; Epilepsy - the way forward; Epilepsy - making it happen; JEC - who we are.
  • JEC Strategic Plan
    The JEC mission statement; JEC strategic objective; JEC short term delivery targets - to end of March 2004; JEC long term delivery targets - to end of March 2006; The relationship between the JEC executive and JEC members; The relationship between the JEC executive and working groups; Proposed JEC groups
  • Brainwave - The Irish Epilepsy Association
    Brainwave provides information, literature, education, support, advocacy and training.
  • The Daisy Garland
    The Daisy Garland aims to improve the quality of life for children with difficult to control epilepsy accompanied by developmental delay.
  • David Lewis Centre (residential)
    National provider of medical assessment, treatment, education and residential care facilities for children, young people and adults with complex epilepsy.
  • Epilepsy Action
    Epilepsy Action is the UK's largest member-led epilepsy organisation, helping over 365,000 people per year through its services.
  • Epilepsy Bereaved
    Supports bereaved relatives, provides information on SUDEP and other epilepsy deaths; promotes research into the investigation and prevention of epilepsy deaths.
  • Epilepsy Connections
    Provide a range of information and support services to people with epilepsy.
  • Epilepsy HERE
    Epilepsy HERE aims to help, inform and support the public in East Kent on all matters relating to epilepsy and related neurological conditions and to assist people with epilepsy, their families and carers.
  • Epilepsy Outlook
    Epilepsy Outlook provides free and confidential practical support, advice and information for people with epilepsy and their carers in Hartlepool and the Tees Valley Area.
  • Epilepsy Research UK
    Promotes and supports scientific and medical research into epilepsy.
  • Epilepsy Scotland
    Provides information, literature, training, support and advocacy throughout Scotland. Also campaigns for change.
  • Epilepsy Specialist Nurses Association
    Provides information about Epilepsy Specialist Nurse services.
  • Epilepsy Wales
    Helping people throughout Wales who have epilepsy, their families and carers, by providing information, support and training.
  • Epilepsy West Lothian
    Support and information for people with epilepsy in West Lothian. Provides training and day care facilities.
  • Gravesend Epilepsy Network
    Gravesend Epilepsy Network is an independently registered charity, set up to give direct help, information and support to people with epilepsy and their families.
  • International League Against Epilepsy (British Branch)
    Represents healthcare professionals and aims to promote education and research and improve the treatment and care of people with epilepsy.
  • Matthews Friends
    Matthew’s Friends support and promote the use of dietary treatments for epilepsy and other neurological disorders with the main emphasis being on the Ketogenic Diet for Children.
  • Meath Trust (Residential)
    Residential/day facilities supporting people with epilepsy and learning disabilities.
  • ARTHOUSE Meath
    Residential/day facilities supporting people with epilepsy and learning disabilities.
  • All-Party Parliamentary Group on Epilepsy at Westminster
    The All-Party Parliamentary Group on Epilepsy meets regularly (four times a year) whilst Parliament is in session to address the needs of over 440,000 people with epilepsy in the United Kingdom. The Group brings together those interested in epilepsy issues and provides MPs with information and access to expert opinion.
  • About Epilepsy
    Epilepsy is a neurological condition. It is diagnosed when someone has recurrent seizures. It is caused by excess electrical activity in the brain.
  • National Epilepsy Week
    Epilepsy is a neurological condition. It is diagnosed when someone has recurrent seizures. It is caused by excess electrical activity in the brain.
  • Press Release - 22 May 2009
    Call to politicians for better epilepsy services - The People from across the UK met with politicians this week to demand better epilepsy healthcare, as part of National Epilepsy Week. Lobbies were coordinated by the Joint Epilepsy Council of the UK and Ireland (JEC) - an umbrella organisation of 26 charities, working together to improve the standard and accessibility of health and support services for people with epilepsy.

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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