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Epilepsy is a neurological condition. It is diagnosed when someone has recurrent seizures. It is caused by excess electrical activity in the brain.
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Residential/day facilities supporting people with epilepsy and learning disabilities.
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BEST Awards
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Brainwave provides information, literature, education, support, advocacy and training.
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National provider of medical assessment, treatment, education and residential care facilities for children, young people and adults with complex epilepsy.
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Events being held both by JEC and all of its member organisations.
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A one-day course for anyone who wants to learn about the administration of emergency medication for epilepsy.
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Epilepsy Action is the UK's largest member-led epilepsy organisation, helping over 365,000 people per year through its services.
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Supports bereaved relatives, provides information on SUDEP and other epilepsy deaths; promotes research into the investigation and prevention of epilepsy deaths.
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Provide a range of information and support services to people with epilepsy.
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Epilepsy HERE aims to help, inform and support the public in East Kent on all matters relating to epilepsy and related neurological conditions and to assist people with epilepsy, their families and carers.
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Epilepsy Outlook provides free and confidential practical support, advice and information for people with epilepsy and their carers in Hartlepool and the Tees Valley Area.
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Promotes and supports scientific and medical research into epilepsy.
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Provides information, literature, training, support and advocacy throughout Scotland. Also campaigns for change.
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Provides information about Epilepsy Specialist Nurse services.
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Helping people throughout Wales who have epilepsy, their families and carers, by providing information, support and training.
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Support and information for people with epilepsy in West Lothian. Provides training and day care facilities.
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Gravesend Epilepsy Network is an independently registered charity, set up to give direct help, information and support to people with epilepsy and their families.
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Inquiry into epilepsy services
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Represents healthcare professionals and aims to promote education and research and improve the treatment and care of people with epilepsy.
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JEC is very concerned about the sudden discontinuation of Emeside capsules.
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The Joint Epilepsy Council of the U.K. and Ireland (JEC) is an umbrella organisation which exists to represent the united voice of the voluntary sector and presents evidence based views on the need to improve services for people with epilepsy, their families, and carers in the UK and Ireland.
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The JEC seeks to develop good working relationships with pharmaceutical companies interested in the field of epilepsy.
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The relationship between government ministers, individual member organisations and the JEC.
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JEC display in the Upper Waiting Hall in the House of Commons at Westminster week commencing 12th January, 2009
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The JEC Education Group provides a forum for JEC members involved in the development of epilepsy education policy to provide considered input on education issues to the JEC Executive Committee.
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Statement of Intent
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The JEC Health Provider Group aims to assist the JEC in raising the profile of epilepsy and campaigning for improvements in respect of all epilepsy-related issues by providing considered input on health issues to the JEC Executive Committee.
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Epilepsy - the problem; Response from Governments; JEC response; Epilepsy - the way forward; Epilepsy - making it happen; JEC - who we are.
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The Marketing and Communications Group has been newly formed to support JEC lobbying activity and campaigns throughout the five countries of the JEC in order to gain maximum awareness and publicity and continue to increase the profile of the JEC and its member organisations. Additionally, the staging of the annual JEC BEST (Best Epilepsy Standards Today) and its communication will be directed by the group.
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JEC Member Activities
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JEC Member Organisations
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Application for membership of Joint Epilepsy Council of the U.K. and Ireland (JEC) is open to any organisation or individual in the U.K. or Ireland that works to meet the needs of people with epilepsy and their families, subject to the approval of the Directors.
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Newsletters
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About JEC
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The JEC Research Group provides a forum for JEC members involved in the epilepsy research to meet and discuss matters of mutual concern and interest.
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The JEC Residential Provider Group provides a forum for JEC members involved in the provision of residential services for people affected by epilepsy to meet and discuss matters of mutual concern and interest.
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The JEC mission statement; JEC strategic objective; JEC short term delivery targets - to end of March 2004; JEC long term delivery targets - to end of March 2006; The relationship between the JEC executive and JEC members; The relationship between the JEC executive and working groups; Proposed JEC groups
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Matthew’s Friends support and promote the use of dietary treatments for epilepsy and other neurological disorders with the main emphasis being on the Ketogenic Diet for Children.
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Residential/day facilities supporting people with epilepsy and learning disabilities.
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Provides information and support to people with epilepsy and their families in the Merseyside & Cheshire area.
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The Masters courses offer three awards at Post-Graduate Certificate, Post-Graduate Diploma and Masters level.
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NCYPE is the UK’s major provider of specialist services for children and young people aged 5 to 25 with complex epilepsy and other neurological conditions.
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Epilepsy is a neurological condition. It is diagnosed when someone has recurrent seizures. It is caused by excess electrical activity in the brain.
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Medical research (with Institute of Neurology), assessment (with the National Hospital for Neurology and Neurosurgery) and residential care for adults.
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Call to politicians for better epilepsy services - The People from across the UK met with politicians this week to demand better epilepsy healthcare, as part of National Epilepsy Week. Lobbies were coordinated by the Joint Epilepsy Council of the UK and Ireland (JEC) - an umbrella organisation of 26 charities, working together to improve the standard and accessibility of health and support services for people with epilepsy.
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Presidential assessment, respite and residential support for people with complex epilepsy.
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Cross-Party Group on Epilepsy in the Scottish Parliament
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The Scottish Epilepsy Initiative plans to raise money to contribute to a range of potential projects.
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Special Notices - Archive
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Special school, adults residential home, day care nursing unit.
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The Daisy Garland aims to improve the quality of life for children with difficult to control epilepsy accompanied by developmental delay.
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The group was launched to work with the All Wales Epilepsy Forum and the Joint Epilepsy Council to raise the profile of epilepsy and campaign for improvements in health services that will improve the lives of the 26,000 people in Wales with the condition.
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WERN aims to create a multi-disciplinary and co-operative approach to epilepsy research in order to initiate a programme of research to enhance best clinical and investigative practice in epilepsy.
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The All-Party Parliamentary Group on Epilepsy meets regularly (four times a year) whilst Parliament is in session to address the needs of over 440,000 people with epilepsy in the United Kingdom. The Group brings together those interested in epilepsy issues and provides MPs with information and access to expert opinion.
