The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council

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Special Notices - Archive

LAYabout The Great Glen Way

Lesslie A Young Chief Executive of Epilepsy Scotland and her husband Ian will be will be walking The Great Glen Way from Fort William to Inverness to raise money for Epilepsy Scotland, one of the JEC member organisation. They will walk 73 miles over 5 days in March 2010, begining their journey on Thursday 25th March and hope to reach Inverness on Monday 29th March. If you would like to help Lesslie and Ian, please donate via the justgiving page (click here), where you will find further information on this great effort.

NCYPE are holding their 3rd National Parents & Families conference on Saturday 3rd July at the Ramada Manchester Piccadilly Hotel
There will be a variety of talks and workshops which will be of interest to all families, whether their child has been recently diagnosed or has had epilepsy for a significant period of time or whether they have mild or more complex epilepsy.

The day will also include a series of workshops for young people with epilepsy, aged between 12 and 18 years, to give them the opportunity to learn with each other and share experiences with their peers.

Please support the NCYPE by telling any parents you work with who may be interested in attending the conference.

Should you require further information about the conference or copies of the booking form or if you would like to receive copies in an electronic version please email info@ncype.org.uk or call 01342 832243 ext 508.

The booking form is also available to download - click here.

NCYPE are also running a series of Study Days and Emergency Medication Courses for Professionals. Click here for further details.

ARTHOUSE Meath
ARTHOUSE Meath
is a charitable enterprise that creates and exhibits artworks for sale in printmaking and painting which celebrate the skills and talents of adults who live with severe epilepsy and physical disabilities. ARTHOUSE Meath is part of the Meath Epilepsy Trust in Godalming, Surrey. Click Here for more.....

"Best Value, Better Care - Commissioning Epilepsy Services" Tues 23 Feb 2010 - Holiday Inn, London Kensington Forum
The JEC is jointly planning a one-day event for PCT and SHA Commissioners responsible for epilepsy services. High quality epilepsy services can change lives - find out how this can be achieved through effective, targeted commissioning at this one day event from the JEC, the Department of Health and UCB Pharma.
Full Programme
Register


Matthew's Friends have launched a new website - www.matthewsfriends.org. On this site you will find details of Matthew's Friends' future events such as a Global Symposium being held for the first time in the UK and an international family meeting, followed by the Matthew's Friends Scottish Ball being held on the 9th October.

Inverness SNP annual conference - October 2009

Aileen Campbell MSP & Public Health Minister Shona Robison

The JEC stand proved popular with delegates.  So much so that it attracted another Cross-Party Group supporter in Aileen Campbell MSP.  Public Health Minister Shona Robison also visited the display staffed by JEC members Epilepsy Connections, Epilepsy West Lothian, Epilepsy Scotland and Quarriers.

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd