The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council
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JEC Working Groups

 

  • JEC Education Group
    The JEC Education Group provides a forum for JEC members involved in the development of epilepsy education policy to provide considered input on education issues to the JEC Executive Committee.
  • JEC Health Group
    The JEC Health Provider Group aims to assist the JEC in raising the profile of epilepsy and campaigning for improvements in respect of all epilepsy-related issues by providing considered input on health issues to the JEC Executive Committee.
  • JEC Marketing and Communications Group
    The Marketing and Communications Group has been newly formed to support JEC lobbying activity and campaigns throughout the five countries of the JEC in order to gain maximum awareness and publicity and continue to increase the profile of the JEC and its member organisations. Additionally, the staging of the annual JEC BEST (Best Epilepsy Standards Today) and its communication will be directed by the group.
  • JEC Research Group
    The JEC Research Group provides a forum for JEC members involved in the epilepsy research to meet and discuss matters of mutual concern and interest.
  • JEC Residential Provider Group
    The JEC Residential Provider Group provides a forum for JEC members involved in the provision of residential services for people affected by epilepsy to meet and discuss matters of mutual concern and interest.

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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