The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council
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The JEC Research Group

The JEC Research Group provides a forum for JEC members involved in the epilepsy research to meet and discuss matters of mutual concern and interest.

The group meets approximately three times a year, chaired by Leigh Slocombe of the Epilepsy Research Foundation. Current group members are:

Mike Glynn, Brainwave
Maureen Lahiff, Epilepsy Bereaved
Margaret Rawnsley, Epilepsy Action
Sanjay Sisodiya, NSE
Leigh Slocombe, Epilepsy Research Foundation (Chair)
Matthew Walker, ILAE

There is an expectation that members should take an active role to increase the effectiveness of joint working and the aim at all times is to reach a consensus on key issues, whilst recognising that the group represents an opportunity for members to share differences of opinion.

For further information about membership of the Group or its activities please contact:-
Sharon Wood,
General Secretary,
Joint Epilepsy Council,
PO Box 186,
Leeds LS20 8WY.
Tel: 01943 871852.
E-mail: sharon.jec@btconnect.com

 

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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