The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

logo
Joint Epilepsy Council
More about JEC         

 

Slideshow image


JEC Organisation

The Joint Epilepsy Council of the U.K. and Ireland (JEC) is an umbrella organisation which exists to represent the united voice of the voluntary sector and presents evidence based views on the need to improve services for people with epilepsy, their families, and carers in the UK and Ireland.


  • JEC - Who we are
    The Joint Epilepsy Council of the U.K. and Ireland (JEC) is an umbrella organisation which exists to represent the united voice of the voluntary sector and presents evidence based views on the need to improve services for people with epilepsy, their families, and carers in the UK and Ireland.
  • JEC Personnel
  • JEC Working Groups
  • JEC Membership Policy
    Application for membership of Joint Epilepsy Council of the U.K. and Ireland (JEC) is open to any organisation or individual in the U.K. or Ireland that works to meet the needs of people with epilepsy and their families, subject to the approval of the Directors.
  • JEC Equal Opportunities Policy
    Statement of Intent
  • JEC Campaigns
    The relationship between government ministers, individual member organisations and the JEC.
  • JEC & Pharmaceutical Companies
    The JEC seeks to develop good working relationships with pharmaceutical companies interested in the field of epilepsy.
  • JEC - Emeside and Zarontin
    JEC is very concerned about the sudden discontinuation of Emeside capsules.
  • JEC Manifesto
    Epilepsy - the problem; Response from Governments; JEC response; Epilepsy - the way forward; Epilepsy - making it happen; JEC - who we are.
  • JEC Strategic Plan
    The JEC mission statement; JEC strategic objective; JEC short term delivery targets - to end of March 2004; JEC long term delivery targets - to end of March 2006; The relationship between the JEC executive and JEC members; The relationship between the JEC executive and working groups; Proposed JEC groups

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


© Copyright The Joint Epilepsy Council, 2010. All Rights Reserved.