The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council

More about JEC         

 

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Member Organisations

Application for membership of Joint Epilepsy Council of the U.K. and Ireland (JEC) is open to any organisation or individual in the U.K. or Ireland that works to meet the needs of people with epilepsy and their families, subject to the approval of the Directors.

 

  • Brainwave - The Irish Epilepsy Association
    Brainwave provides information, literature, education, support, advocacy and training.
  • The Daisy Garland
    The Daisy Garland aims to improve the quality of life for children with difficult to control epilepsy accompanied by developmental delay.
  • David Lewis Centre (residential)
    National provider of medical assessment, treatment, education and residential care facilities for children, young people and adults with complex epilepsy.
  • Epilepsy Action
    Epilepsy Action is the UK's largest member-led epilepsy organisation, helping over 365,000 people per year through its services.
  • Epilepsy Bereaved
    Supports bereaved relatives, provides information on SUDEP and other epilepsy deaths; promotes research into the investigation and prevention of epilepsy deaths.
  • Epilepsy Connections
    Provide a range of information and support services to people with epilepsy.
  • Epilepsy HERE
    Epilepsy HERE aims to help, inform and support the public in East Kent on all matters relating to epilepsy and related neurological conditions and to assist people with epilepsy, their families and carers.
  • Epilepsy Outlook
    Epilepsy Outlook provides free and confidential practical support, advice and information for people with epilepsy and their carers in Hartlepool and the Tees Valley Area.
  • Epilepsy Research UK
    Promotes and supports scientific and medical research into epilepsy.
  • Epilepsy Scotland
    Provides information, literature, training, support and advocacy throughout Scotland. Also campaigns for change.
  • Epilepsy Specialist Nurses Association
    Provides information about Epilepsy Specialist Nurse services.
  • Epilepsy Wales
    Helping people throughout Wales who have epilepsy, their families and carers, by providing information, support and training.
  • Epilepsy West Lothian
    Support and information for people with epilepsy in West Lothian. Provides training and day care facilities.
  • Gravesend Epilepsy Network
    Gravesend Epilepsy Network is an independently registered charity, set up to give direct help, information and support to people with epilepsy and their families.
  • International League Against Epilepsy (British Branch)
    Represents healthcare professionals and aims to promote education and research and improve the treatment and care of people with epilepsy.
  • Matthews Friends
    Matthew’s Friends support and promote the use of dietary treatments for epilepsy and other neurological disorders with the main emphasis being on the Ketogenic Diet for Children.
  • Meath Trust (Residential)
    Residential/day facilities supporting people with epilepsy and learning disabilities.
  • Mersey Region Epilepsy Association
    Provides information and support to people with epilepsy and their families in the Merseyside & Cheshire area.
  • National Centre for Young People with Epilepsy (Residential)
    NCYPE is the UK’s major provider of specialist services for children and young people aged 5 to 25 with complex epilepsy and other neurological conditions.
  • National Society for Epilepsy (Nse) (Residential)
    Medical research (with Institute of Neurology), assessment (with the National Hospital for Neurology and Neurosurgery) and residential care for adults.
  • Quarriers (Residential)
    Presidential assessment, respite and residential support for people with complex epilepsy.
  • St Elizabeths Centre (Residential)
    Special school, adults residential home, day care nursing unit.
  • Wern (Wales Epilepsy Research Network)
    WERN aims to create a multi-disciplinary and co-operative approach to epilepsy research in order to initiate a programme of research to enhance best clinical and investigative practice in epilepsy.
  • Scottish Epilepsy Initiative
    The Scottish Epilepsy Initiative plans to raise money to contribute to a range of potential projects.

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd