The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council
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JEC & Pharmaceutical Companies

The JEC seeks to develop good working relationships with pharmaceutical companies interested in the field of epilepsy. It recognises that people with epilepsy will be the beneficiaries of new anti-epileptic medications so the JEC has a duty to represent their interests in an independent and impartial manner. There is no promotion of one anti-epileptic drug over another by the JEC. Neither is it the JEC's role to promote drug based therapies in preference to alternative strategies. The JEC believes that in an ideal world everyone with epilepsy should have access to all strategies that may help to improve seizure control.

The JEC does not have independent sources of funding over and above its membership subscriptions, so it actively encourages pharmaceutical companies to become corporate supporters of the JEC through the payment of an annual donation.

The JEC reserves the right to comment publicly when anyone, including any pharmaceutical company, is not acting in the best interest of people with epilepsy. However it would only do this after consultation with the individual or organisation in question.

JEC recognizes that many of its members have active and mutually beneficial relationships with pharmaceutical companies, and is fully supportive of this. Like its member organizations, the JEC would not compromise its independence by accepting financial support from any individual or organisation which it believes is not acting in the best interests of people with epilepsy.

JEC acknowledges the support it has received from:

 

Pfizer Global Pharmaceuticals
Sanofi-Aventis
UCB Pharma Limited


 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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