The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council

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Epilepsy Connections
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Epilepsy Connections provides information and support within the Greater Glasgow & Clyde and the Forth Valley Health Board areas to people with epilepsy, their families, friends and those with whom they live and work.

The Fieldwork Projects, covering the Greater Glasgow & Clyde and Forth Valley Health Board areas,  provide user-friendly information about epilepsy issues, a listening ear at times of crisis, practical support in living with epilepsy, advocacy and signposting the way to other sources of help.

The Schools Project delivers fun, interactive talks about epilepsy to pupils of all ages and epilepsy awareness sessions for teachers and staff.

The Befriending Project, which is based in Glasgow, supports people isolated by their condition to get out and about and enjoy activities that many of us take for granted.  We also have opportunities with a few hours a week to spare to become volunteer befrienders.

The Multicultural Project, based in Glasgow, promotes awareness of epilepsy issues and provides bilingual and culturally sensitive information and support to people affected by epilepsy within ethnic minority communities.

The Mainstreaming Project, based in Glasgow, offers adults with epilepsy the chance to access education, training, voluntary and paid employment.  People work to an individual personal development plan designed to build skills, knowledge and confidence.

The Living Well with Epilepsy Project runs workshops in the Forth Valley area for adults with a confirmed diagnosis of epilepsy and a partner, carer or family member.  At the end of the programme of workshops people will understand more about epilepsy and how to manage it.

Training We offer comprehensive epilepsy awareness and first aid educational packages, including the administration of rescue medication and Heartstart training, suitable for anyone with a personal or professional interest in epilepsy.

We also offer dedicated information, training and support to health professionals caring for people with epilepsy in primary care settings, particularly those involved in annual reviews of patients with epilepsy, including nursing home staff.

We also run various sessions, including Memory Workshops, Art Sessions for Adults, children’s events and Complementary Therapies.
 

Epilepsy Connections
100 Wellington Street
Glasgow G2 6DH

T: 0141 248 4125
F: 0141 248 4125

E-Mail: smaxwell@epilepsyconnections.org.uk
Web:   www.epilepsyconnections.org.uk

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Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd