The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Epilepsy Bereaved
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Epilepsy Bereaved is the only charity in the UK dedicated to preventing sudden unexpected death in epilepsy (SUDEP) and other seizure related deaths.

Core to the work of the charity is providing information and support to bereaved families, friends and carers who have lost a loved one through epilepsy. 

We offer;

  • someone to listen
  • a confidential service within the charity
  • information specific to epilepsy deaths and SUDEP
  • opportunities to meet other people bereaved by epilepsy

Epilepsy Bereaved is advised by a panel of epilepsy experts and specialist pathologists.  We therefore have access to information and advice to assist the bereaved to understand the cause of death.

 

Aims of Epilepsy Bereaved;

  • To reduce the number of avoidable deaths from epilepsy 
  • Raise awareness and influence health professionals and policy makers 
  • Develop research into the causes of sudden death in epilepsy 

PO Box 112,
Wantage,
Oxford OX12 8XT

T: 01235 772 850
Bereavement
support line: 01235 772 852

E-Mail:
information@epilepsybereaved.org.uk

Web:
http://www.sudep.org

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Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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