The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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National Assembly for Wales Cross-Party Group on Epilepsy

The National Assembly for Wales Cross-Party Group on Epilepsy (NAfW CPG on Epilepsy) held its last meeting in April, chaired by Nerys Evans AM.

The group was launched to work with the All Wales Epilepsy Forum and the Joint Epilepsy Council to raise the profile of epilepsy and campaign for improvements in health services that will improve the lives of the 26,000 people in Wales with the condition. The All Wales Epilepsy Forum (AWEF) was formed as a result of a one day National Epilepsy Workshop held in July 2003, sponsored by the Welsh Assembly with the aim of promoting improved health and social services for people with epilepsy in Wales. The work of the AWEF is supported by the Joint Epilepsy Council, who also provides the Secretariat for the NAfW CPG on Epilepsy.

Membership of the group is open to all Assembly Members to organisations interested and involved in epilepsy care. Members of the NAfW CPG on Epilepsy come from all the major political parties, working together to promote the interests of people with epilepsy, their families and carers.

For further information about membership of the Group or its activities please contact:-
Sharon Wood,
General Secretary,
Joint Epilepsy Council,
PO Box 186,
Leeds LS20 8WY.
Tel: 01943 871852.
E-mail: sharon.jec@btconnect.com

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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