The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council
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All-Party Parliamentary Group on Epilepsy at Westminster

The All-Party Parliamentary Group on Epilepsy meets regularly (four times a year) whilst Parliament is in session to address the needs of over 440,000 people with epilepsy in the United Kingdom. The Group brings together those interested in epilepsy issues and provides MPs with information and access to expert opinion.    

The next meeting of the All-Party Parliamentary Group on Epilepsy will be advised as soon as possible.

  

The current Officers of the group are:

Chair: Earl Howe (Conservative)
Vice Chairs: Cheryl Gillan MP (Conservative)
Norman Lamb MP (Liberal Democrat)
Paul Truswell (Labour)
Christine McCafferty MP (Labour)
Edward Timpson MP(Conservative)
Secretary: David Cameron MP (Conservative)
Treasurer: John Battle MP (Labour)

Membership is open to all Members of Parliament and to organisations interested and involved in epilepsy care. Members of the APG on Epilepsy come from all the major political parties, working together to promote the interests of people with epilepsy, their families and carers. Members of the public can observe Group meetings by prior arrangement with the Secretariat (see below).

Activities have focused on raising awareness of epilepsy, exploring issues such as access to health service provision, epilepsy awareness in education, employment, and social opportunities

The Joint Epilepsy Council (JEC) provides the Secretariat for the All-Party Parliamentary Group on Epilepsy.

For further information about membership of the Group or its activities please contact:-
Sharon Wood,
General Secretary,
Joint Epilepsy Council,
PO Box 186,
Leeds LS20 8WY.
Tel: 01943 871852.
E-mail: sharon.jec@btconnect.com


 

 

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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